Katie Mac's Tour de Coeur
Katie was born with a small left ventricle and very small mitral valve. We were prepared for the Norwood operation but Dr. Tweddell determined it would not be needed. Instead he created a restricted Atrial Septal Defect (ASD), banded her pulmonary artery, and repaired her coarctation of the aorta. Since she did not have the Norwood she technically is not considered to have hypoplastic left heart syndrome (HLHS). However, she has since had the Glenn and Damus Kaye Stansel as well as the Fontan surgeries - therefore, she is not quite a Shone's Complex. She is a hybrid. That said - I usually refer to her as a HLHS because more people are familiar with it.
Katie was thriving from a cardiovascular standpoint. In December of 2017, Katie was diagnosed with Osteosarcoma. She had a tumor in her right femur. We are absolutely devastated. We just don't understand why so Katie has been dealt with such horrendous diagnoses.
The care that Katie receives is outstanding. The number of specialists treating her is growing. All of her doctors, nurses, and therapists seem to take her feistiness in stride - especially her PT.
Katie has been working particularly hard in physical therapy. When Katie gets sassy in therapy her PT gives it right back to her. Their friendly banter keeps Katie in a good mood and motivates her through the pain & torture = PT. This past March Katie was able to go on her Make a Wish trip to Australia. Thankfully, she took her family along too. We all had an outstanding time. Katie's hard work definitely paid off as she climbed the Sydney Harbor Bridge. Katie continues to work on balance, strength, and conditioning. Hopefully, she will be able to walk the entire time at Al's Run.
We hope you will join us for Al's Run and consider raising money for this wonderful place.
Welcome to our team page! Teams have a huge impact on the success of Briggs & Al’s Run & Walk and we are glad you are here!
Why are we doing this?
The short answer is that we want to do something that helps kids, and can’t think of a better organization to support than Children’s Hospital of Wisconsin.
The longer answer is that by running or walking in this event for Children’s Hospital, we can raise funds that 100% support the care provided to kids, from life-saving cancer and heart treatments all the way to life-changing community care. At Children’s, they say they believe kids deserve the best, and they live up to that promise — for all kids.
Time and money is precious and we owe it to ourselves to be thoughtful about causes we support.
- Children’s has the No. 1 NICU in the country, able to care for the most fragile newborns with the most daunting complications.
- Children’s places nurses in schools in at-risk communities so that kids get preventative, regular care right in their own backyard.
- Children’s funds ground-breaking research.
- Children’s is a non-profit and relies on events like this one to pay for the level of care our kids receive.
Walking as a team at Briggs & Al’s Run & Walk sends out a huge shout of support to the kids cared for by Children’s Hospital, and raises critical funds to support their care. It’s also a lot of fun, with kid-focused activities and entertainment all the way!
If you haven’t already, please join our team or help kick start fundraising with a donation of your own by clicking the donate button.
Our fundraising goal: $0.00
Raised to date: $400.00