Welcome to Katie's page for Race with Jace!
Thanks for coming to check out my page and why I do this event for the past 7 years!
I do this event, manage a team, and fundraise for Children's Hospital in honor of my Children's Champion Jace and in memory of our baby girl Joey. Children's has been here for my family for some of our darkest times and they are the most amazing place and blessing.
All starts with Jace, our now 6 year old, country boy, and a kid that loves life! When he was 6 weeks old he was diagnosed with an AV Canal. When he was born, he was a beautiful, healthy, head full of hair baby. I was a new mom and so missed some of the tell tale signs I guess. He was not a big eater, would fall asleep nursing all the time. He was not putting on weight like he should. He was quite the peanut. I had him in and out of weight checks, lacation consults, and drs appts. Finally at 6 week the doctor heard a murmur and had him taken for an xray of his heart. At this point she noticed that his heart was enlarged and had us sent to Children's Hospital immediately for more testing. He was diagnosed then with a congential heart defect. It was a whirlwind from there. After 3 days in the ICU we were sent home to try to get Jace plumped up a bit more so he could have heart surgery. We returned about 1 week later and at this point, he did not gain enough weight was was admitted again. 1 week after that, he was scheduled for open heart surgery. VERY scary day for his mom and dad and family. Giving your 2 month old over to the doctors was the hardest thing to do. Overall his surgery went well. Recovery was a bit up and down the first few days, but overall he healed well. EAting on the other hand was a different story. He ended up having a G-Tube put in to provide his nutrients, he would not take anything by mouth. AFter 47 days in the hospital we were finally sent home. That was another scary day for us. We had a lot of new things to do to care for him, luckily we had wonderful support from family and friends. Jace is doing well now. He has no restrictions at this point, another surgery may be in his future however. He goes in once a year for an ECHO to check how his heart is doing. We are so blessed to have CHW in our backyard and thankful for all the wonderful nurses, doctors, therapists, and caregivers at CHW!
The 2nd reason this walk means so much to my family is we do this in remembrance of our daughter Joey. She was diagnosed in utero with a Ring 15 Chromosome abnormality as well as a congential diaphramatic hernia. Joey passed away 6 hours after she was born. The congenital diapharmatic hernia did not allow her lungs to grow and develop. Once she was born she was unable to breathe on her own. There were many other complications involved, but overall this was the main thing that caused Heaven to gain another sweet soul. We met with many different areas at Children's and spent many hours with Fetal Concerns and Child life. They were amazing. I truely believe that if we were not at CHW that we would not have been able to meet our daughter. She was born on her due date, full term, and beautiful. We were able to hold her, baptise her, and she opened her eyes and looked at us. Children's truely works miracles and we were so blessed to be able to spend those 6 short hours of her life with her.
So WHY should you donate to CHW....without donations many programs that are offered to families and children's there would not be funded. We used several of those programs and were so THANKFUL they were available to us. CHW helps so many kids and families! Please consider donating in honor of Jace and in memory of Joey.
Thank you for taking the time to read my families story!
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